CHAPTER 1. Genetic Prevention Services

Chapter 1 added by Stats. 1995, Ch. 415, Sec. 8.

§§ 124975–125119.5 · 37 sections

1. ARTICLE 1. Hereditary Disorders Act §§ 124975–124996 · 10 sections

   • § 124975 The Legislature hereby finds and declares that: (a) Each person in the State of California is entitled to health care commensurate with his or her health care…
   • § 124977 (a) It is the intent of the Legislature that, unless otherwise specified, the genetic disease testing program carried out pursuant to this chapter be fully…
   • § 124980 The director shall establish any regulations and standards for hereditary disorders programs as the director deems necessary to promote and protect the public…
   • § 124981 (a) A person shall not use the title of genetic counselor unless the person has applied for and obtained a license from the department. (b) The applicant for a…
   • § 124982 (a) The department shall issue a temporary genetic counselor license to a person to practice as a licensed genetic counselor who meets all of the following:…
   • § 124985 A violation of any of the provisions of the Hereditary Disorders Act (Section 27) or any of the regulations adopted pursuant to that act shall be punishable as…
   • § 124990 For the purposes of the Hereditary Disorders Act (Section 27), hereditary disorders programs shall include, but not be limited to, all antenatal, neonatal,…
   • § 124991 (a) (1) The Birth Defects Monitoring Program, within the State Department of Public Health, shall collect and store any umbilical cord blood samples it…
   • § 124995 The following programs shall comply with the regulations established pursuant to the Hereditary Disorders Act, as defined in Section 27: (a) The California…
   • § 124996 (a) The Genetic Disease Testing Fund is continued in existence as a special fund in the State Treasury. The department may charge a fee for any activities…
2. ARTICLE 2. Newborn Screening §§ 125000–125002 · 3 sections

   • § 125000 (a) It is the policy of the State of California to make every effort to detect, as early as possible, phenylketonuria and other preventable heritable or…
   • § 125001 (a) The department shall establish a program for the development, provision, and evaluation of genetic disease testing, and may provide laboratory testing…
   • § 125002 (a) In order to align closely related programs and in order to facilitate research into the causes of, and treatment for, birth defects, the Birth Defects…
3. ARTICLE 2.5. California Biobank Program §§ 125010–125012 · 3 sections

   • § 125010 Commencing July 1, 2026, and each July 1 thereafter, the State Department of Public Health shall generate a report that includes each of the following: (a) The…
   • § 125011 Commencing July 1, 2026, and each July 1 thereafter, a report generated pursuant to this article shall be provided to the Legislature until the department has…
   • § 125012 A report submitted to the Legislature pursuant to this article shall be submitted in compliance with Section 9795 of the Government Code.
4. ARTICLE 3. Sickle Cell Anemia §§ 125025–125035 · 3 sections

   • § 125025 It is the policy of the State of California to make every effort to detect, as early as possible, sickle cell anemia, a heritable disorder that leads to…
   • § 125030 The department may require that a test be given for sickle cell anemia pursuant to Section 125025 to any identifiable segment of the population that the…
   • § 125035 The department is authorized to make grants or contracts for demonstration projects to determine the feasibility of alternate methods of testing for sickle…
5. ARTICLE 4. Prenatal Testing §§ 125050–125119.5 · 18 sections

   • § 125050 The department shall administer a statewide program for the prenatal testing for genetic disorders and birth defects, including, but not limited to,…
   • § 125055 The department shall: (a) Establish criteria for eligibility for the prenatal testing program. Eligibility shall include definition of conditions and…
   • § 125060 The participation by any individual in the prenatal testing program shall be wholly voluntary and shall not be a prerequisite to eligibility for, or receipt…
   • § 125065 All prenatal diagnosis centers shall meet standards developed by the department and shall agree to accept patients from state funded or administered programs,…
   • § 125070 Laboratories licensed by the department shall not offer the maternal serum-alpha fetoprotein screening test for prenatal detection of neural tube defects of…
   • § 125080 A licensed physician and surgeon or other person engaged in the prenatal care of a pregnant woman or attending the woman at the time of delivery shall obtain…
   • § 125085 (a) As early as possible during prenatal care, a blood specimen obtained pursuant to Section 125080 shall be submitted to a clinical laboratory licensed by the…
   • § 125090 (a) Subdivision (a) of Section 125085 shall not be applicable if the licensed physician and surgeon or other person engaged in the prenatal care of a pregnant…
   • § 125092 The department, in consultation with the Office of AIDS and with other stakeholders, including, but not limited to, representatives of professional medical and…
   • § 125095 The department may adopt regulations as it determines are reasonably necessary for the implementation of the Maternal and Child Health Program Act (Section 27).
   • § 125100 (a) Clinical laboratories licensed by the department, approved public health laboratories, local health departments, physicians and surgeons, or other persons…
   • § 125105 (a) The blood specimen and test results pursuant to subdivision (b) of Section 125085 shall be confidential and shall not be disclosed, except as otherwise…
   • § 125107 (a) For purposes of this section, “prenatal care provider” means a licensed health care professional providing prenatal care within his or her lawful scope of…
   • § 125110 The Maternal and Child Health Program Act (Section 27) shall not apply if the pregnant woman objects to the test required by that act on the ground that the…
   • § 125118 (a) The State Department of Public Health shall develop guidelines for research involving the derivation or use of human embryonic stem cells in California.…
   • § 125119 (a) (1) All research projects involving the derivation or use of human embryonic stem cells shall be reviewed and approved by a stem cell research oversight…
   • § 125119.3 (a) Each stem cell research oversight committee that has reviewed human embryonic stem cell research pursuant to Section 125119 shall report to the department,…
   • § 125119.5 (a) The department shall at least annually review reports from stem cell research oversight committees, and may revise the guidelines developed pursuant to…