CHAPTER 2. Genetic Disease Services

Chapter 2 added by Stats. 1995, Ch. 415, Sec. 8.

§§ 125125–125286.35 · 37 sections

1. ARTICLE 1. Genetically Handicapped Persons Program §§ 125125–125191 · 16 sections

   • § 125125 This article shall be known and may be cited as the Holden-Moscone-Garamendi Genetically Handicapped Persons Program.
   • § 125130 (a) The Director of Health Care Services shall establish and administer a program for the medical care of persons with genetically handicapping conditions,…
   • § 125135 As used in this article, “genetically handicapping condition” shall mean a disease that is accepted as being genetic in origin by the American Society of Human…
   • § 125140 The program established under this article shall include any or all of the following medical and social support services: (a) Initial intake and diagnostic…
   • § 125150 The director shall establish the rate structure for reimbursement of physicians and supportive services. The rates shall not be less than the amounts paid for…
   • § 125155 Reimbursement under this article shall not be made for any services that are available to the recipient under any other private, state, or federal programs or…
   • § 125155.1 (a) Any person found eligible for services under this article whose employer-sponsored health coverage is later terminated or any person who applied for…
   • § 125157 (a) The department may require a client under this article to apply to enroll or otherwise participate in any other state or federal program or other…
   • § 125160 The department shall receive and expend all funds made available to it by the federal government, the state, its political subdivisions or from other sources…
   • § 125166 (a) Commencing July 1, 2009, except as provided in subdivision (d), each client determined or redetermined by the department to be eligible for services…
   • § 125170 The department shall maintain sufficient, appropriate staff to carry out this article.
   • § 125175 The health care benefits and services specified in this article, to the extent that the benefits and services are neither provided under any other federal or…
   • § 125180 The department shall require all applicants to the program who may be eligible for cash grant public assistance or for Medi-Cal to apply for Medi-Cal…
   • § 125185 (a) (1) By July 1, 2016, or a subsequent date determined by the department, Genetically Handicapped Persons Program (GHPP) requests for authorization of…
   • § 125190 Notwithstanding any other law, the department is considered to be the purchaser, but not the dispenser or distributor, of blood factor products under the…
   • § 125191 (a) The department may enter into contracts with one or more manufacturers on a negotiated or bid basis as the purchaser, but not the dispenser or distributor,…
2. ARTICLE 2. Long-Term Care for Degenerative Genetic Disease §§ 125200–125220 · 5 sections

   • § 125200 The Legislature finds and declares that there are many persons in California who are victims of chronic and degenerative genetic conditions, who experience a…
   • § 125205 The department and the State Department of Social Services shall, after consultation with the Genetically Handicapped Persons Program of the department and…
   • § 125210 For the purposes of this article, chronic and degenerative diseases shall include those conditions that are neurological and neuromuscular in origin, including…
   • § 125215 The department and the State Department of Social Services shall review regulations that currently provide disincentives to providers of in-home and…
   • § 125220 The actions undertaken pursuant to this article shall not impose additional state obligations or expenditures for the care of persons with chronic and…
3. ARTICLE 3. Huntington’s Disease Research and Workshop Grants §§ 125225–125250 · 6 sections

   • § 125225 The Legislature hereby finds and declares that: (a) Huntington’s disease is a chronic progressive inherited disorder of the central nervous system. (b) The…
   • § 125230 The director may establish any rules or criteria for grants under this article as the director deems necessary.
   • § 125235 There is hereby created a Scientific Advisory Review Committee. The membership of the committee shall be composed of 11 members who shall be representatives…
   • § 125240 Pursuant to the rules or criteria as the director may deem necessary, the Scientific Advisory Review Committee shall review and recommend approval of grant…
   • § 125245 The director may make grants as follows: (a) Individual research grants to scientists and facilities residing in this state that have research experience with…
   • § 125250 Not more than 10 percent of any money appropriated for purposes of this article shall be utilized for the administration of this article.
4. ARTICLE 4. Alzheimer’s Disease §§ 125275–125285 · 4 sections

   • § 125275 (a) The Legislature finds that Alzheimer’s disease, a devastating disease which destroys certain vital cells of the brain, affects more than 1,500,000…
   • § 125280 (a) Any postsecondary higher educational institution with a medical center may establish diagnostic and treatment centers for Alzheimer’s disease subject to…
   • § 125281 From funds appropriated to the department in the Budget Act of 2016 for these purposes, the department shall allocate funds to the diagnostic and treatment…
   • § 125285 The department shall provide public and professional education on Alzheimer’s disease to educate consumers, caregivers, and health care providers, and to…
5. ARTICLE 5. Standards of Service for Providers of Blood Clotting Products for Home Use Act §§ 125286.10–125286.35 · 6 sections

   • § 125286.10 This article shall be known, and may be cited, as the Standards of Service for Providers of Blood Clotting Products for Home Use Act.
   • § 125286.15 The Legislature hereby finds and declares all of the following: (a) Hemophilia is a rare, hereditary, bleeding disorder affecting at least 4,000 persons in…
   • § 125286.20 Unless the context otherwise requires, the following definitions shall apply for purposes of this article: (a) “Assay” means the amount of a particular…
   • § 125286.25 Each provider of blood clotting products for home use shall meet all of the following requirements: (a) Have sufficient knowledge and understanding of bleeding…
   • § 125286.30 The California State Board of Pharmacy shall administer and enforce this article.
   • § 125286.35 Nothing in this article shall apply to either hospital pharmacies or health system pharmacies that dispense blood clotting products due only to emergency,…